In November, Scott Kim, M.D., Ph.D., associate professor of psychiatry and a member of the Depression Center, served as a faculty member the Parkinson’s Disease Foundation (PDF) Clinical Research Learning Institute-Northeast Region in Florham Park, New Jersey.
By serving as faculty, he helped prepare people touched by Parkinson’s to join PDF’s national advocacy network known as Parkinson’s Advocates in Research. He presented an educational session entitled, “Bioethics and Parkinson’s Research” to the Research Advocates – all of whom either live with Parkinson’s or are care partners to those living with it.
The PDF welcomed 27 new members to its national network of Research Advocates who are influencing research and speeding the development of new and effective treatments for Parkinson’s. The members from the Northeast region completed an intensive three-day training to prepare them to join the network.
During the training, the newest PDF Research Advocates took part in rigorous sessions on the science of Parkinson’s and the process that brings new treatments to market. They did so under the guidance of leaders from institutions such as the National Institutes of Health in Bethesda, MD. Armed with advocacy skills, they will return to their communities to take on research-related activities – including serving on research advisory boards and speaking about clinical research at conferences and support groups – through which they can share their unique perspectives as people touched by Parkinson’s disease.
The diverse group of educators, scientists, lawyers and other professionals were chosen through a competitive application process open to those from the states in the Northeast region, stretching from Maine to Virginia. All PDF Research Advocates are living with or are care partners to those with Parkinson’s. In the upcoming year, the Northeastern regional training will be followed by three additional trainings around the United States.
About Parkinson’s Disease
Parkinson’s disease is a progressive neurological disorder that affects nearly one million people in the US. Although promising research is being conducted, there is currently no cure for Parkinson’s.
About Parkinson’s Advocates in Research (PAIR)
Parkinson’s Advocates in Research is a growing network of 130 Research Advocates from 34 states who influence research and speed the development of new and effective treatments for Parkinson’s. Research Advocates are actively collaborating with research professionals, government agencies and private industry to ensure the unique perspectives of people touched by Parkinson’s are included in research decisions and implementation. PDF Research Advocates are key partners in PDF’s mission to support the research and ideas that will improve the lives and futures of people touched by Parkinson’s.
About Parkinson’s Disease Foundation
The Parkinson’s Disease Foundation® (PDF®) is a leading national presence in Parkinson’s disease research, education and public advocacy. PDF is working for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research while supporting people living with Parkinson’s through educational programs and services. Since its founding in 1957, PDF has dedicated over $90 million to fund the work of leading scientists throughout the world and over $37 million to support national education and advocacy programs.